Skip to main content

To The Person Questioning This Autism Thing

"Autism wasn't a thing in my day."
"Doctors just want to diagnose everything these days. Everybody is sick with some made up thing".
"A spankin' should knock the 'autism' right out of him."

Oh, the things I was told in those early days of getting Wyatt diagnosed.

It was probably the most insecure time in my life. I knew the doctors were onto something, but I would listen to these people talk at me and nod my head in silent agreement, and then cry in my car on the way home because of the fear that no one would accept my son for who he was if he didn't fit the cookie cutter mold of All American Boy.

I also know this story is the same for just about everyone who's child receives an autism diagnosis. Because of that, a lot of families --ours included-- choose not to talk about the diagnosis.
I've finally come to realize that people don't say these things to be malicious or to devalue our children.
They say it because they don't know any better.

So, family and friends of ASD families, pull up a seat while I take you to school.

1. You are right, autism, as we know it today, was not a thing in your day.
In fact, Autism Spectrum Disorder (ASD) was not recognized as the spectrum (i.e., diverse) disorder that it is, until 1991. Your kids were probably born around the time autism got the recognition it needed. There's an interesting phenomenon happening, where parents are going to get help for their kids, and walking away with an ASD diagnosis for their child AND themselves.

2. Autism is not something a person grows out of.
While therapies go a long way in helping people on the spectrum to learn, cope, and assimilate with Neurotypical (NT) people, it does not "cure" them.

3. Spanking kids on the spectrum will not fix anything.
A spanking will not help a child who doesn't understand what you are saying, suddenly understand you.
A pop on the butt will not bring them out of a meltdown.
A wooden spoon will not make my child suddenly switch focus from something his brain has fixated on to what I'm asking him to do.
You can't beat the autism out of a child any more than I could beat you into autism.

4. Getting an autism diagnosis is not easy. It's not something that your doctor even actually diagnoses. When the dust settled from the YEAR (15 Months) of referrals, and therapists, and evaluations from roughly 14 different people, we had a diagnosis.
We had an amazing team, but for many families, this takes much longer.

If you have found yourself being "That Guy" to an autism family, it's ok. You weren't the one sitting in on the hours of therapies, and doctors visits, and evaluations. You're not the one who has lost sleep at night scouring the internet to understand better what this diagnosis means. ASD families can't fault you for what you don't know.

BUT, now you know!

What these families need from you is just your acceptance. Ask questions about how you can help. Ask questions about what autism looks like for their family.
Be a listener.
Be a supporter.
Be an advocate.
Be anything but the jerk questioning a diagnosis.

Comments

Popular posts from this blog

When Insecuritues Control You

Have you ever thought about the power you give to your insecurities? I remember one day a while back, I was getting dressed for the gym and I realized all of my leggings were still in the washing machine. My only option for the leg-day ahead was compression shorts. I died a little inside thinking about how people might judge the cellulite on my legs or think i was too big to be wearing shorts at all. Why couldn't I have been born during a time period where curves and rolls were attractive? But, then again, booty shorts wouldn't even be a thing in that day and age, and I surely would already be dead from small pox or stoned to death for one sin or another by now. I digress. I closed the drawer and decided I could just skip the gym that day. And then it hit me. I was so insecure about other peoples opinions of MY body, that I would rather stay home than risk someone thinking something negative about me. What kind of life is that? What kind of example was that setting for

The Gun Talk

As a hunting, pro-gun family I have one very important thing in common with my anti-gun friends, and that is that we BOTH want to keep guns out of the hands of our kids. I remember the first time I awkwardly had "the talk" with a fellow mom. My husband had been in the garage reloading ammo and the neighbor boy was intently watching and asking questions and then said: "I'm going to tell my dad he needs to learn to do this." My heart sunk as I realized if this kid just ran home and told his parents that the neighbor was playing with bullets in his garage, it could definitely be blown-up and misunderstood. So I text his mom, and in true Brandy-style, I word vomited more than needed to be said. "Hey. We definitely weren't playing with guns around your kid. My husband is just reloading ammo. All our guns are under lock and key, but because guns were being talked about, we also told your son that he is never allowed to touch any in our house if for some

The Part I Havent Figured Out

This is the part I haven't figured out yet. Friends, I can spin beautiful words on a page about all the amazing things that autism has brought to our lives. I can give you a glimpse into how we have overcome the day to day issues. But I don't know how to do this. I don't know what to do as I watch my child sink it sickness, utterly clueless about what's wrong. I see the way he holds his eyes differently. I watch as his words quickly slip from vaguely being able to tell me something is wrong with his stomach, to no words at all and just groans of severe discomfort. He swaddles himself in a blanket and stares blankly at the wall. He is spending all his energy on whatever is going on inside him, and there is nothing left to even ask for one of his favorite toys. My mom-gut sounds an alarm that this is a different kind of not communicating. This is a different kind of tired. There is something really wrong. And with that comes anxiety that I think only special needs